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The growing burden of mental health and the role of digital technologies in the Global South: policies, cultural contexts, and community-based transformations-a systematic review of gray literature ev

Authors: Onyango JO
Journal: Frontiers in public health
mental health psychology open access

Abstract

Cerebral palsy (CP) is one of the most common childhood motor neurodevelopmental disorders, which affects movement, posture, and functional abilities []. Children with CP often experience impairments in maintaining balance, mobility, postural control, and participation in age-appropriate activities []. Oftentimes, parents may believe that therapy can only be effectively conducted by experts in a clinical setup or therapy room on a one-to-one basis, which may reduce the importance of home carryover, proper handling, mobility, and active engagement of the child at home []. Many children with CP are unable to access required therapeutic services due to financial constraints, limited availability of therapists, and caregiver difficulties in ensuring regular therapy visits. These limitations frequently affect the independence of individuals with CP within the home, school, and community, thereby reducing participation and engagement in meaningful daily activities [,]. Current rehabilitation approaches for children with CP increasingly emphasize interventions that are activity-based, participation-focused, and family-centered []. CP being a lifelong condition, parent-mediated home-based rehabilitation programs seem to be a practical strategy to promote continuity of therapy. This approach also aligns with the International Classification of Functioning, Disability and Health (ICF) model, thereby encouraging active caregiver involvement in the child’s rehabilitation process within the natural home environment and community []. This approach may improve accessibility to intervention, increase carryover at home by the caregiver, thereby providing more opportunities to repeat and practice tasks, hence targeting neuroplasticity to its maximum [-]. Therefore, the caregiver can learn proper handling and gain proficiency in integrating the therapeutic activities into the daily routines of the child, thereby improving motor planning. Although this home-based parent-mediated approach is advocated by many health practitioners and interventionists, limited evidence is available on its effect on functional outcomes, participation, and engagement among children with diplegic CP in real-life settings. This case series aimed to evaluate the outcomes of a 10-week individualized parent-mediated home-based rehabilitation program in children with diplegic CP.