Caregiver's Kitchen: A Mixed Methods Feasibility Study of a Culinary Medicine and Coaching Intervention for Caregivers of Children With Cancer.
Authors: Milliron BJ, Salman K, Schlechter H, Mountain P, Longo G, Deutsch JM, Jubelirer T
Journal: Integrative cancer therapies
mental health
psychology
open access
Abstract
Loss of functionality and quality of life are common to many acute and chronic diagnoses and are intrinsically related to challenging prognoses, dependence on care, and threats to life (Kelley and Bollens-Lund ). Palliative care (PC) aims to improve and relieve suffering and improve the quality of life of people with life-threatening illnesses and their families by the early identification, correct assessment, and treatment of pain and other biopsychospiritual and social signs and symptoms (WHO ). When established in a timely and appropriate manner, this care model promotes the rational use of healthcare resources by reducing interventions that are clinically unnecessary for the patient being cared for (Hui et al. ; D’Alessandro ). Although it is a specialized approach, PC should be offered at all levels of healthcare and, therefore, provided by non-specialist teams who have been properly trained (Baylis et al. ). General PC care constitutes the foundation of this care model (D’Alessandro ), since the demand for this type of care far exceeds the capacity of specialized teams (Santos et al. ; Vitorino et al. ). Globally, there are countries and regions (such as North America, Europe, and Australia) where PC is governed by specific legislation, but more than 70% of PC needs occur in developing countries (WHPCA ). According to the map developed by the World Hospice and Palliative Care Alliance, Brazil is classified as 3b on a 6-point scale, which indicates limited availability of morphine, limited number of PC services, and a lack of awareness among the general public and professionals regarding PC (Clark et al. ).