Beyond Better Data: A Call for Improved Responses to Alcohol and Other Drug Harms Among Culturally and Linguistically Diverse Communities in Australia.

Parkinson's disease (PD) is a neurodegenerative disorder characterized by motor and nonmotor symptoms, with annual costs approaching $52 billion. Family caregivers play an integral role in PD patient care, providing support that often delays institutionalization. The demands of caregiving and prolonged course of PD place caregivers at significant risk of strain. Several clinical variables in PD patients have been shown to influence caregiver strain. Depression affects up to 50% of PD patients and is associated with neurocognitive deficits, functional disability, and emotional distress, which impair the patient's well‐being and increase caregiver demand. Daytime sleepiness has also been implicated in caregiver strain and is routinely assessed by clinicians due to its direct impact on safety, particularly driving ability. As patients lose independence and functional capacity, caregiver responsibilities intensify, amplifying strain. Prior research has shown that greater PD severity predicts higher caregiver strain, though few longitudinal studies have examined the trajectory of caregiver strain in the evolving disease course of individual patients., Given PD's duration, with a median survival of 10.3 years post‐diagnosis, longitudinal research is essential for understanding how caregiver strain develops.