Functional Neurologic Disorder Mimicking Acute Stroke: The Diagnostic Value of Serial Bedside Examination Despite Normal Neuroimaging.

In 1996, the U.S. Congress passed an appropriations bill that included the , which prohibited the use of federal funds to promote or advocate for gun control. The amendment targeted political advocacy, but the result was a ban on funding all research related to firearm injuries and fatalities. A presidential memorandum later clarified that the does not ban research about firearm injury prevention. Congress agreed, and between 2020 and 2022, the CDC and the National Institutes of Health (NIH) awarded more than $150 million for firearm injury-prevention research researchers (). However, the decades-long funding moratorium also produced a ‘disordered and highly segmented’ data ecosystem that was useful for only ‘narrow studies to inform national policy and for use in local operational decision-making’ (, p. 2). In 2019, researchers at the University of Michigan created the Firearm Safety Among Children and Teens (FACTS) Consortium. FACTS provided a foundation for the Community Firearm Violence Prevention Network (CFVP) that collects, evaluates, and archives data produced by research teams that study interventions and community factors contributing to firearm-related injury and death. This paper reports on a quality improvement project aimed at informing and extending the CFVP by examining the information and data needs of public health, medical, and criminal justice researchers. Semi-structured interviews with CFVP affiliates and researchers confirmed the existence of significant limitations to existing datasets and supplemental resources. Study participants discussed (1) the infrastructure and research support that would improve their productivity; (2) benefits of using and combining datasets, (3) challenges in accessing data, and (4) data collection and harmonization strategies that increase their research impact. We present findings that highlight data-related challenges in this space that are widely applicable to researchers, data scientists, and policymakers in the social and behavioral sciences.