Quality of life and care experiences in a US multi-institutional neuroendocrine tumor cohort.
Authors: O'Rorke MA, Xu T, DeCook RR, McDowell BD, Gryzlak BM, Rudzianski NJ, Serrano KC, Wehrheim AM, Grewal US, Chandrasekharan C, Dillon JS, Halfdanarson TR, Gamblin TC, Cowell LG, Else T, Soares HP, Sukrithan V, Chandaka S, Sanoff HK, He FC, Geller D, Ramirez RA, Liu M, Lancaster W, Mailman JA, Moran H, Wahmann M, Gellerman E, Chrischilles EA, NET-PRO Study Investigators
Journal: Journal of the National Cancer Institute
mental health
psychology
open access
Abstract
Informal caregivers of patients with atrial fibrillation and multimorbidity often maintain physical functioning but experience significant psychological strain, particularly anxiety and depression. Informal caregivers with high levels of engagement had lower burden, better perceived overall health, and improved outcomes in the anxiety/depression dimension of health-related quality of life. Notable differences emerged by age, sex, cohabitation status, country, daily caregiving time, patient comorbidity, and patient mobility, showing that caregiver burden and quality of life vary across demographic and contextual characteristics.